What Language Our Survival Speaks

Hello good folks (and auto-follow bots). What a noisy, quiet year. Noisy on the input, quiet on the output. Almost every writer I know or follow has spent some (most?) of 2021 living on the writer’s block. I am not immune. I’ve lived there, too.

Just as the year closed out, however, I finally felt that spark. It turned into this piece for the Spoonie Authors Network. Called Welcome to Disability (a House with Infinite Rooms), it’s my letter to the folks with long Covid who are just finding themselves in our ranks, though I think it can speak to anyone who exists in this space called Disabled.

I hope to have more to share soon. I hope you are well. I hope whatever it is you love to create is only hibernating in these wild times. I hope. I hope. I hope. Because I can’t fathom the alternative.

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Home is an Anti-virus

by H. E. Casson
(CW: Homelessness, poverty, illness, neglect)

I am writing this in my home. I am writing it indoors, with heat and clean water, wearing washed clothes, my skin not itching, my partner’s voice rising and falling in the next room. I am safely housed.

This is true now, but for some of my life, it wasn’t. I’ve lived in an unsafe home, a group home, a shelter. I’ve crashed on couches. I’ve slept rough, slept in my school, slept in spaces not meant for humans. I was me, the same me I am now, but alone and hungry, frantic and deadened all at once. I knew I was disposable.

Over 20 years ago, I met a person who was precious and amazing. He was disposable too. I knew him for weeks, not months or years, but I think about him all the time. He was clever and challenging, generous and creative. He caught TB in a shelter. Because of the nature of crisis-friendships, I don’t know how he is now, or if he is now, but I knew him long enough to see him fall apart. I knew him long enough to learn that illness will always come for humans in shelters, in care facilities, in prisons, in mental health wards. As long as it stays in those boxes, we don’t hear much about it.

And what can I do? I tell stories from my own limited perspective, from this warm place that coats the memories in gauze, making them less sharp. I am here in my home, safe, at least six feet from the world.

What is home, in a time like this? Home is an anti-virus. It keeps us safe. Home is personal protective equipment, covering our most vulnerable parts. Home is an avatar of community care. Home is, and should be, a right.

The Pandemic Chapbooks to Support Charitable Giving initiative by 845 Press and Collusion Books includes a poem I wrote called For Chandrahas, Who is Likely Dead. It is about my friend, about illness, and about home. If you donate to a charity — any charity — you can get a copy of the chapbook for free.

There’s a charity in Toronto called Sanctuary that is taking care of people, members of our community, at great risk and in the most challenging time possible. They are doing this in the face of immeasurable hardship and loss. I hope you will consider donating to them, and to the folks they serve.

I wish there was a way to pull all this together, to end it in a way that is satisfying, but much like the situation, there’s no easy conclusion. There is no bow to tie, just a hundred, hundred loose threads that require a communal will and concerted effort to begin to gather.

In all this, I wish us safety. I wish us a thing called home.

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How to Survive Surviving a Crisis

(CW: Pandemic, poverty, unsolicited advice)

Poet and professor Orchid Tierney has organized a virtual reading series called Distāntia. She calls it “an experimentation with intimate social distancing through remote access poetry.”

My poem is about the value that people who are often forgotten bring to a crisis. The wisdom of survival doesn’t always wear a three piece suit. Sometimes it wears a Chewbacca onesie and hides out in its blanket fort, thank you very much.

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This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.